brain cancer

A perfect day.

Wednesday, March 19, 2014


Sunday March 16th - A perfect day. Here's why.

Started the day with a homemade breakfast by my mother-in-law. Went on a two-mile walk with Justin and two of his siblings through the hills behind his parents' house. Went to the park with my brothers, their kids, and my parents. Got my mom out in the sunshine, got her to exercise a little bit, and had a blast with my family. We all needed the fresh air. Spring always makes me feel alive again. This day is one that will stay in my memory forever. I love this woman with all of my heart. She is a champion.

The awful news #2.

Tuesday, March 18, 2014

Hi Friends and Family.

I have not been writing on my blog for over a week, because my heart has been heavy. Some have heard the news from our family, some have not. I feel it appropriate to share now what most of us have already heard.

On Thursday March 6, my parents went in for my mom's regular MRI. She'd been undergoing other treatments that had given her more time than we thought we'd have since last fall we were told she had roughly six months left. In November she had a 2nd brain surgery, which is what gave us six months more with her. Estimates of time are often just estimates, and people can die sooner, or live MUCH longer than doctors presume they will. It is often that we hear of someone beating the odds they were given. Sometimes it's will power, sometimes it's medicine working better than hoped, other times it's attitude. All of the time it's a miracle. So, here we are 5 months later. My mom is still here and we are loving every minute that we have with her.

March 6th rolls around, and she visits her doctor again. This time the brain scan showed an advancing tumor. My parents and doctors together decided that she would spend her last weeks, to possibly months, at home. The treatments are not working, and whatever they could do wouldn't really prolong things for her anymore. I kind of always knew this day would come. I made the awful mistake of googling her cancer when I was told the name of it a year ago. That was not a fun experience. I was at work, and had to rush to the bathroom after reading the statistics because I thought I would vomit.

I say this more easily now because I've had time to breathe, time to let it sink in. I'm not sure it ever really will, though. How do we ever let this sink in when we love someone so much? I don't think you can ever just say, "Thy will be done, Lord", and just go on your merry way without a care. I can accept God's will, but I don't love it. His will isn't always easy, in fact it's often extremely difficult. If it were easy, there would be no faith involved.

I spent the weekend, after my stepdad told us the news that she would return home to hospice care, in a fog. I somehow was blessed with an afternoon of peace, enough so to buy a new car because our car was falling apart, and we desperately needed to get this done. I know there were angels with me that day because I was supposed to be falling apart with sadness, yet I was excited and optimistic about purchasing a new car (which I ABSOLUTELY LOVE DRIVING). If there is an angel of anti-anxiety, a prozac angel, that is the one that was with me that day. Somehow I held it together through Friday at work, Saturday at the dealership, and Saturday night watching a movie with Justin.

I woke up at 5 am Sunday morning when Justin woke up to pee, and it felt like someone was sitting on my chest. I could not get comfortable and felt extremely off.  I had yet to cry, and I really didn't want to. I was afraid that if I let the flood gates open, all hell would come out with it. Like a Pandora's box of emotions. Justin came back to bed, and I told him I felt awful and couldn't sleep and explained the tightness in my chest, and the pit in my stomach. He told me I needed to cry, and that I'd been holding it in, but I needed to get it out. I told him I didn't want to. I really meant it. I wanted to be tougher than this, I wanted to not let it hurt me. But it was hurting me in a new way I'd never experienced before. My chest really felt constricted and it felt like my soul hurt. I don't know how to explain it other than that. My heart was breaking, in a way I'd never experienced. The worst way.

And then I took his advice. I just let it all out. We were there at 5 am in the dark on Sunday morning and I was just bawling. Tears were running down my cheeks into my hair and ears, soaking my pillow and the sheets below. I was angry at God for letting the treatments not work, I was worried for my family because all of our hearts were breaking and I didn't want us all to hurt, and I was scared of the future. A future without my mother. I was overwhelmed by all of it, and I just wanted to rewind to a better time in life, when my mom was healthy, and everything was ok.

Justin was amazing through it all. Encouraging me to cry to get rid of the chest pains, was genius. Then suddenly, he did what he always does when things are impossibly hard. He lets me cry it out, reassures me that I will be ok, and that I'm strong...and then he cracks me up. He started reciting poems off the top of his head that were similar to Shel Silverstein, and they were so good that he wrote some down and we've been trying to write more since then.

He is my saving grace. For whatever reason, he just knows what to do with me when I'm struggling, and not sure what to do for myself. I don't know what I ever did without him.

For whatever reason, my mother has to leave us before we ever wanted her to. I'm so grateful that we get notice, that she isn't just here one day and gone the next. I've had time to say everything I want to say, and just be with her during her hardest days. I got to braid her hair after brain surgery to keep it away from the stapled incision. I got to lay with her in the dark as she pondered aloud what this cancer would bring to our family. I've become closer to my siblings than I might have otherwise. I've gained knowledge of hardship, and what it does to your heart, to your outlook on life, love, God, faith, the world, and trials. I've seen more people be touched by my mother, than I ever thought she could reach, and I thought she had reached A LOT already. I've had my view on faith permanently altered, and formed a closer bond with God, but I'm still mad at Him.

I've seen people I hardly know reach out to me with the most appropriate words that I needed to hear on some of my hardest days. I've seen miracles, and prayers answered in the way I didn't want.

The most important thing I've seen though, is my mother, through it all, never relent in her love for her family, and God. She is perfect in every way, and I am eternally grateful that I am her daughter. I consider myself the luckiest girl in the world because of that fact.

Even though our hearts are breaking, we are all so lucky to have her now. I guess now, we just love her with all we've got and see what the future holds.


Miracles.

Thursday, February 27, 2014

Above all what makes me smile the most right now is how Justin makes my mom giggle and laugh. She is in a lot of pain. She is miserable. And then he'll crack her up and the laughter heals her brain for a little bit.

We were visiting her at my grandparents' house last Thursday after one of her treatments. When she is tired, she has a really hard time with word recall and loses her train of thought very quickly. She will mix up names, and terms like "we", "you", etc. She was struggling at trying to tell me something and got pretty frustrated. It always breaks my heart. I wish I could fix it. I hate seeing her in any pain whatsoever.

Justin made her laugh about something dumb we were joking about. Then I started venting about how we were sick of cars since our transmission failed and is STILL NOT FIXED. I mentioned we'd get one of those carts that are pulled by a human, and we'll take turns pulling each other to work. When I said, "What are those called again?", she immediately said, "a rickshaw." As if she had never been struggling with her thoughts at all.

Miracles, people. Rickhaw is a really hard word. Most people don't even know it. But then, she is incredible with words, and the tumor and scar tissue can't even keep her down. I get stuck on a hard word, and my genius of a mom, a regular thesaurus, chimes in.

Laughter really is healing. I'm so grateful that she and Justin like each other so much. He really is great at making her laugh. We spent the weekend with her getting her to laugh and smile. I couldn't imagine a more perfect weekend right now. It is exactly how I wanted to spend my time.

Oh and during that we watched my friend's brother get a bronze medal in the olympic bob-sledding!

Miracles, people. Miracles!

I love my mom. I am incredibly lucky that I still get to spend time with her, and have her be able to talk to me, and still get to see her face. Brain cancer may be a jerk and may be beating the crap out of her, but my mom is a fighter.


The whole dam family.

Tuesday, December 24, 2013

My family did something new this year for Christmas. We all went somewhere TOGETHER. And by all, I mean my grandparents, my parents, my siblings, siblings-in-law, nieces, and nephew. All under one roof, for most of a week.

I thought it would be kind of stressful since we never do this. It actually wasn't at all. It was the perfect week in my opinion. My mom has seen some excellent breaks lately by way of her health. She is still very much afflicted by her cancer, but she was starving and ate TONS of food, which is the polar opposite of how she was at Thanksgiving. So we spent time just hanging around the house, watching homemade plays created by an 11-year old and acted out by her younger cousins. We made meals for 24 people, ate together, piled into bedrooms together, and really had a blast. 

We even fit in an emotional spur-of-the-moment family chat. Tears of love were shed as we all sat together with my mom and talked about the goings-on of the past year and how much we love her. I feel like the kids all became best friends, and all of us became closer. I hope we start making this a yearly ritual. I couldn't have asked for a more rejuvenating, relaxing, enjoyable time. Family really is the root of all that matters in this world. I am so thankful I have the massive family I do. I couldn't imagine my life without a single one of them. I am a rich girl.

As part of this week together, we decided to head out to the Hoover Dam since it was close to where we were. There is a new highway bridge that spans the peaks above the dam. We bundled up my mom since it was chilly and windy, and headed off to explore. Many a "dam" joke was told, and we had a great time exploring the desert. 

See pictures below:














NOW BRING ON CHRISTMAS ALREADY!!!

Holiday thoughts.

Thursday, December 19, 2013

Having a parent with cancer has really changed me. How can you not be a part of something like that without change? Seeing my mom suffer and go through the hardships of brain cancer has really made human suffering more obvious to me. I used to be aware of it, and had heard stories of woe that I couldn't relate to completely, but that still touched my heart. But this year has really changed me.

I used to see women with shaved heads and think, "I wonder why she chopped her hair off?". It also was rare that I noticed anything was wrong with people. Now I see women in wigs or with shaved heads, and think to myself, "I wonder what her story is, I hope she has support and love everyday with her trials." It's not just the shaved head though, I can see it in their eyes. I know what cancer looks like in someone's face. I've never seen pain like that in her eyes, until this year. And it looks similar in everyone's face. Cancer treatments cause similar side effects, and discolor your skin, and break your body down.

All of the sudden I'm completely aware of everyone's hardships and suffering. I hear of a new cancer story every day, or another awful disease that shouldn't have to be part of a family's life. A local bishop's wife is in a wheel chair because she was recently diagnosed with a degenerative disease that will take her life much sooner than she or he ever thought. They have young children, and he is now her caretaker as well.

I hear about kids with cancer, families losing multiple people at a time, couples being both diagnosed with cancer together, and facing it together. I hear about husbands losing wives to cancer 2 years after their marriage, with a 1 year old baby to raise alone.

I am ever aware now of people's suffering, and while I don't like knowing how much hardship is in the world, I am grateful to be more aware. It has helped me to treat people as if they are carrying a heavy burden, and forgive them easier because of that.

Why does it seem that this year is the year of trials? I don't know a single person without something hard going on in their life. And it's not just hard, it's REALLY hard. I hope that 2014 will be easier for all of us who carry heavy burdens. I pray for everyone every night. I know what feeling desperate for miracles feels like, and I hope that your miracles come. If they don't, I hope that you find solace in the people you have around you, and that you can pray to God to have your burdens lifted or lightened somehow.

So...that's the thing with hardships and trials, you always come out a different person, and it generally is for the better. No matter what though, your world view will be forever changed. Thankfully this year has ultimately given me the gift of love.

Yes, I am angry at the situation that I cannot change. But I ultimately have more love for my fellow man, and more appreciation for other people and their amazing feats of emotional strength and endurance.

May this holiday season be filled with peace, comfort, and leave you surrounded by those you love. That's all I can want for anyone, really.


The growing up.

Friday, December 6, 2013

I think one of my favorite things about growing up is being able to learn all the various forms of love.

When you're a child, love is so easy. Children naturally love, and it's in love's simplest form. I love you because you shared with me. I love you because I don't understand hate yet.

There are so many other versions of love to be had, though.

The friendship love
The romantic love
The superficial love
The "I don't wanna be lonely" love
The obsessive love

But the one thing I am most excited about learning as I grow in life, is that true love really does exist. I think I'm in the beginning stages of it, since I've only been married for just over a year. However, I know I am already experiencing evidence that it exists in my short time being married.

It's in the little things:
Slow dancing in the kitchen to my favorite Christmas song while our cheap, delicious, breaded, fish filets bake in the oven.
The way I always get to have a a few sips of his Coke whenever he gets one because he knows I will never drink a whole one by myself.
The fact that instead of being angry with me when I get snappy, he says, "you need a nap."
Laughing on the floor of our bedroom/office while we try to see who has the strongest abs by throwing random core workouts at each other. (He won.)
He told our pets that I feed him really well, and that at least I'm remembering to feed one of the creatures living in our house.

I don't know, guys, I think the more I go through life with Justin, the more I become infatuated with him. I think about what this year has been full of, and I see most of it as a positive thing because I had him by my side every step of the way. He has helped cheer me up on my hardest days, (see the FART STORY) and been more patient than anyone I have ever met.

So, this holiday season all I need is the people I love, for my mom to catch a break, and world peace.





...And apparently the 14 blu-rays we splurged on during Cyber Monday on Amazon that are going to be gift-wrapped under our tree. (Don't judge me, I love theatrics.)

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